Bracelet sales, Harley drawing to help local girl fighting rare disease

A Wilson County girl suffering from a rare, life-threatening disorder is getting help through a bracelet-selling fundraiser.
May 30, 2014
(Submitted to The Democrat) Funds raised from bracelet sales will help 10-year-old Paisley Kelley, who suffers from an incurable, but treatable, disease.

 

A Wilson County girl suffering from a rare, life-threatening disorder is getting help through a bracelet-selling fundraiser. 

Paisley Kelley, 10, is fighting Niemann-Pick, a genetic disease that affects the liver, spleen and brain and has no known cure.

However, symptoms of the disease can be treated with medication and the Kelley family is currently waiting on FDA approval on a treatment that is not covered by insurance.

Paisley, who was diagnosed with Niemann-Pick at age 7, is now getting help and support from family, friends and the community to fight the disease.

To lend their support for the family and the cause, the Kelleys’ family and friends are selling bracelets to help raise money.  

The costs for the bracelets are one for $10, five for $40, 10 for $60 and 20 for $100.  

Additionally, all who donate by purchasing one or more bracelets will be entered into a drawing to win a Harley-Davidson motorcycle.  

The custom-made motorcycle, which was customized by Ted Mitchell, of Ted’s Custom Cycles in Cookeville, is signed by some of the biggest names in country music, such as Florida Georgia Line, Rascal Flatts, Luke Bryan, Little Big Town and George Strait. Artists have also signed the helmet that goes in tow with the bike.  

The one-of-a-kind Harley-Davidson will be on display at the Hog Rally through Saturday in Cookeville and at the Summer of Hope Listening Party at The Listening Room June 17 in downtown Nashville.  

The drawing for the Harley-Davidson will be November 8.

A $10 donation to buy a “Prayers for Paisley” bracelet will give you a free entry to win the Harley.

To buy bracelets or for more information, visit the showings of the Harley-Davidson or visit prayersforpaisley.us.

Donations may also be made at any SunTrust branch under the trust fund in Paisley Kelley’s name. 

 

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